Rare with Flair

Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and e

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93. the great cardigan debate: our style roots

Posted May 14, 202401:04:41

hi hello hey, we’re back to bring the “flair” by combining personal style and personalities!

Whether you love fashion like us or despise...

92. cass’ guide dog is retiring?!

Posted April 30, 202401:15:05

hi hello hey, the title says it all: Cassandra’s guide dog, Romana, is retiring

Like humans, guide dogs also get to retire from their years...

91. doctors at a bar, cute lab mice, & dancing dinosaurs: HPS conference recap

Posted April 16, 202401:20:44

hi hello hey, it’s springtime, which also means we get to recap one of our favorite things: the annual Hermansky-Pudlak Syndrome family conference!

Back...

90. too sick to be healthy, too healthy to be sick

Posted April 2, 202401:07:58

hi hello hey, we’re back again to talk about life’s gray areas.

It’s been a minute since we’ve talked about chronic illness, since one...